Family Members and Caregivers

Published November 2019

The Psychiatric Services Editor’s Choice provides essential curated collections from recent issues of Psychiatric Services.  Each month, Editor Lisa Dixon and the Early Career Psychiatrist Advisory Committee offer a curated collection from the rich resource of articles published in the journal. Updates will focus on one area, summarizing for the researcher, clinician, and policy analyst the latest information and seminal research with links to specific content from Psychiatric Services.

Engaging family members and caregivers in the care of people with serious mental illness is widely regarded as a core component of successful treatment and recovery. We begin this month’s collection by highlighting the experiences of family members and caregivers of individuals with serious mental illness, including the psychological and financial impact they often face. The collection then focuses on several articles describing the importance of family member and caregiver involvement in the care process, including shared decision making during and after hospitalization. Next, the collection provides examples of key articles that have helped establish the evidence base for family education and other family support services. Finally, we present articles on family-to-family programs, an effective and generalizable model for family education. We include an article that describes a family support program targeting family members of veterans and active duty soldiers. As a whole, this collection offers the opportunity to better understand the unique issues facing family members and caregivers of people with serious mental illness, as well as services that have the potential to improve their own experiences and the recovery of their loved ones.

Please note that not all articles in this curated collection are available without a subscription. For access, learn about subscribing to Psychiatric Services.


Impact of Patients’ Psychiatric Hospitalization on Caregivers: A Systematic Review
Bridget E. Weller, Ph.D., Madelaine Faulkner, M.P.H., Otima Doyle, Ph.D., Stephanie S. Daniel, Ph.D., David B. Goldston, Ph.D.
2015, Volume 66, Issue 5, pp. 527–535

Psychological Distress Among Latino Family Caregivers of Adults With Schizophrenia: The Roles of Burden and Stigma
Sandy M. Magaña, Ph.D., M.S.W., Jorge I. Ramírez García, Ph.D., María G. Hernández, M.S.W., Raymond Cortez, B.A.
2007, Volume 58, Issue 3, pp. 378–384

Psychological Distress Among Caregivers of Individuals With a Diagnosis of Schizophrenia or Schizoaffective Disorder
Debra Lerner, M.S., Ph.D., Hong Chang, Ph.D., William H. Rogers, Ph.D., Carmela Benson, M.S., M.S.H.P., Mercedes C. Lyson, Ph.D., Lisa B. Dixon, M.D., M.P.H.
2018, Volume 69, Issue 2, pp. 169–178

Family Involvement in the Clinical Care of Clients With First-Episode Psychosis in the RAISE Connection Program
Amy L. Drapalski, Ph.D., Sarah Piscitelli, M.A., Rufina J. Lee, M.S.W., Deborah Medoff, Ph.D., Lisa B. Dixon, M.D., M.P.H.
2018, Volume 69, Issue 3, pp. 358–361

Family Involvement in Psychiatric Hospitalizations: Associations With Discharge Planning and Prompt Follow-Up Care
Morgan Haselden, B.A., Tom Corbeil, M.P.H., Fei Tang, M.P.H., Mark Olfson, M.D., M.P.H., Lisa B. Dixon, M.D., M.P.H., Susan M. Essock, Ph.D., Melanie M. Wall, Ph.D., Marleen Radigan, Dr.P.H., M.S., Eric Frimpong, Ph.D., M.A., Rui Wang, M.S., Steven Lamberti, M.D., Matthew Schneider, M.D., Thomas E. Smith, M.D.
2019, Volume 70, Issue 10, pp. 860–866

Why and How Family Caregivers Should Participate in Shared Decision Making in Mental Health
Johannes Hamann, M.D., and Stephan Heres, M.D.
2019, Volume 70, Issue 5, pp. 418–421

Preferences for Family Involvement in Care Among Consumers With Serious Mental Illness
Amy N. Cohen, Ph.D., Amy L. Drapalski, Ph.D., Shirley M. Glynn, Ph.D., Deborah Medoff, Ph.D., Li Juan Fang, M.S., and Lisa B. Dixon, M.D., M.P.H.
2013, Volume 64, Issue 3, pp. 257–263

Outcomes of a Brief Program, REORDER, to Promote Consumer Recovery and Family Involvement in Care
Lisa B. Dixon, M.D., M.P.H., Shirley M. Glynn, Ph.D., Amy N. Cohen, Ph.D., Amy L. Drapalski, Ph.D., Deborah Medoff, Ph.D., Li Juan Fang, M.S., Wendy Potts, M.S., and Deborah Gioia, Ph.D., L.C.S.W.
2014, Volume 65, Issue 1, pp. 116–120

Consumer and Family Psychoeducation: Assessing the Evidence
D. Russell Lyman, Ph.D., Lisa Braude, Ph.D., Preethy George, Ph.D., Richard H. Dougherty, Ph.D., Allen S. Daniels, Ed.D., Sushmita Shoma Ghose, Ph.D., and Miriam E. Delphin-Rittmon, Ph.D.
2014, Volume 65, Issue 4, pp. 416–428

The Family Forum: Directions for the Implementation of Family Psychoeducation for Severe Mental Illness
Amy N. Cohen, Ph.D., Shirley M. Glynn, Ph.D., Aaron B. Murray-Swank, Ph.D., Concepcion Barrio, Ph.D., Ellen P. Fischer, Ph.D., M.P.A., Susan J. McCutcheon, Ed.D., R.N., Deborah A. Perlick, Ph.D., Armando J. Rotondi, Ph.D., Steven L. Sayers, Ph.D., Michelle D. Sherman, Ph.D., Lisa B. Dixon, M.D., M.P.H.
2008, Volume 59, Issue 1, pp. 40–48

Services to Families of Adults With Schizophrenia: From Treatment Recommendations to Dissemination
Lisa Dixon, M.D., M.P.H., Alan Lyles, Sc.D., M.P.H., Jack Scott, Sc.D., Anthony Lehman, M.D., M.S.P.H., Leticia Postrado, Ph.D., Howard Goldman, M.D., Ph.D., and Elizabeth McGlynn, Ph.D.
1999, Volume 50, Issue 2, pp. 233–238

Outcomes of a Randomized Study of a Peer-Taught Family-to-Family Education Program for Mental Illness
Lisa B. Dixon, M.D., M.P.H., Alicia Lucksted, Ph.D., Deborah R. Medoff, Ph.D., Joyce Burland, Ph.D., Bette Stewart, B.S., Anthony F. Lehman, M.D., M.S.P.H., Li Juan Fang, M.S., Vera Sturm, M.S., Clayton Brown, Ph.D., and Aaron Murray-Swank, Ph.D.
2011, Volume 62, Issue 6, pp. 591–597

Generalizability of the NAMI Family-to-Family Education Program: Evidence From an Efficacy Study
Micaela Mercado, M.S.W., Ph.D., Ashley Ann Fuss, M.S.W., Nanaho Sawano, Alexandra Gensemer, M.S.W., Wendy Brennan, Kinsey McManus, Lisa B. Dixon, M.D., M.P.H., Morgan Haselden, Andrew F. Cleek, Psy.D.
2016, Volume 67, Issue 6, pp. 591–593

Effectiveness of the NAMI Homefront Program for Military and Veteran Families: In-Person and Online Benefits
Morgan Haselden, B.A., Teri Brister, Ph.D., Suzanne Robinson, M.S.W., Nancy Covell, Ph.D., Luca Pauselli, M.D., Lisa Dixon, M.D., M.P.H.
2019, Volume 70, Issue 10, pp. 935–939

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